We are free!!!

We went to the Dr again today and we are now free of the IV!!!  YAY!!!  Sleep here I come!

I know Little E is so much happier without it, I can't imagine having to deal with that every day. We are down to 2 meds twice a week so there is a ton of good stuff that came from today's visit.

I think E was happy to have it gone because he followed me around the rest of the day.  This is a new thing for him. ;o)  We are taking tiny little baby steps but I think we are beginning to go in the right direction.

Oh my goodness!!!  SO MAD!  We have AT&T for our cell phone carrier... they stink!!!  We have texting and counted on having it while we were in ET since we knew we would need to contact the kids.  The plan was to text them when we were near a phone and have them call us.  This would a .50 charge as opposed to calling at 3.49 per minute.... or any part of  minute.  We were assured that texting was available.  SO guess what it wasn't and their tech team had no clue what to do, nor did they ever call us...they kept texting us and saying to text them back.  DUH!!! So we got our bill, it's NUTS!  I called and said I wanted the 1 - 2 minute calls to be pro-rated to the texting charge since they couldn't figure out how to make it work. I was told they would. WELL, today  get an email saying they won't do it. We are responsible for the whole thing.  I am not asking them to take the whole bill, I did have to make other calls on it, I wanted the ones that clearly could have been .50 texts.  SO mad, and the arrogant supervisor that I waited 30 minutes to talk to was no help.  SO MAD!  As soon as it's not going to cost me an arm and a leg, we are dropping them.  Their coverage stinks anyway.

lol...hhhmmm perhaps it's a good thing I started a new bible study tonight.  From the looks of the rant above, I may need it. ;o)  

More fun

Here are some pics of the kids having fun out back...

And then the boys taking an afternoon siesta... 

Recharged

Nothing like a new day and praising the Lord to bring new life.

My honey came home yesterday and immediately took over... THANK YOU God for my husband! But then we got ourselves together and went to the Music Builds concert.  There was Jars of Clay, Robert Randolph Family Band, Switchfoot and Third Day... my favorite.  

We had SO much fun. And being surrounded by a couple thousand people and my closest friends, praising God, lifting hands and signing so loud I can't speak... it's GOOD stuff.

This week when I was in one of my darkest moments, I was laying in bed with my Ipod listening to a song from Third Day's newest cd called Call My Name.  As I listened I just called out to Jesus (well silently because everyone else was asleep ;o))  But I felt so much release and peace afterwards, and to be able to actually cry out last night in the concert was a blessing.

Then as you can tell from my previous post we got to meet them.  I am such a dork I had so much to say but so little time so I just said "Thank you".  Thank you for listening to God, for hearing His word and sharing through your music so that when we are in our dark days you can help us cry out to Jesus in ways that we may not be able to on our own.

We have had a really great day today.  Again my hubby let me sleep in, and I feel SO much better.  Then we went outside to play and pick up sticks and stuff from the "hurricane" Hanna, and mow and swing on the swing set.  

God has been faithful to hear my cry for help.  Thank you LORD!

Fun

Look what we got to do last night... This was after a long night of hot air and praising the Lord, I don't even really recognize me...lol But it's really us and and that's really Third Day!!!!!

Foot Fetish?

So S was sitting with E after we had tried to awaken him from a nap.  He decided that it wasn't time to wake up and used her foot as a pillow.  He had a death grip on her toes so that she couldn't get up...lol

Not all work...

Here is a few pics of the boys playing together...

P.S.  I just happened to notice the date on the camera...lol  oops

Normal?

I am not sure if I should post this...or how exactly I will word it, but I think maybe there is someone out there that will understand... or perhaps you will just tell me to shut up and quit whining. ;o)

As it turns out, I am not settling so well.  Me, the super mom, the one that has to take care of everything, because of course no one else can do it quite the same way... is not really so super. I have spent the better part of the last 4 days either in tears or on the verge.  This is SO totally not like me.  I am also a stress eater and I am not eating... so I knew there was something pretty wrong with me.  

Yesterday was a pretty tough one, E was in a rare mood and had at least 6 30+ minute tantrums, and by the 6th one I was in tears right with him.  There is so much that we have to learn about each other and we have been handed a ton of extra baggage to share on top of it. When we brought N home we had some tough times but we didn't have 7 IV med times a day, no dressing changes, no oral meds ...that he doesn't like, we just had to get to know each other. I like that way SO much better...lol

I have prayed constantly for some relief, for some rest, for some help.  Well, I believe I have been like that guy in the story that is in a flood and on his roof and prays for help.  God sends a couple of boats and a helicopter and the guy tells them to go away God will save him.  The guy gets to heaven and asks God why He didn't save him, and God says... I sent you boats and the helicopter and you refused it.

Today I went to visit a counselor, and guess what she said?  You're normal... you've just been given some major blows and it's become too much.  hhhmmmmm well really??!! I said to her, so ... what do I do?  She told me to utilize my friends, and family.  To get out  and away for an hour a day.  I need to use all those people that have asked me... "What can I do?"  Now I can tell them come to my house for an hour.  

I have also come to realize that perhaps I am not super mom?  Perhaps there are others that can do the job as well.  Right now I am the only mommy here, but Grandmas are great stand in's and are willing to help.  D will be home tomorrow, and hopefully all next week.  The IV should be out in Tuesday and we may have some normalcy and sleep. 

Humble pie, isn't it grand?